Anna has had 10 infusions and is due for her 11th on Wednesday. She does so incredibly well with them. She doesn't make a sound when we do them, and she is up and running as soon as they are done! She hasn't been sick since we started them in May, which leads us to believe that she is at her therapeutic dose. I have taken her off all of her asthma meds, and she hasn't needed anything other than the Hizentra since we started this May 23. That is absolutely amazing!
Anna had her blood drawn today for the first time since she started the infusions. I am curious to see where her levels are now. We draw them right before she is due for her next infusion so she is in a trough and it should give us a better idea of what her levels are doing (more so than if she got her blood drawn immediately following an infusion). She was so big and sat still, even though she cried a bit while they drew her blood. Anna has also grown several inches and gained 8 pounds since starting this in May!
Anna also had an eye doctor appointment today. In February, she was far-sighted, and she also had an astigmatism. The eye doctor wanted to check her in 6 months to make sure things aren't getting worse. We received good news today! She could see 20/20, she was closer to having "normal" vision (not being near or far sighted), and her astigmatism went from .5 to .25! The doctor is confident that she will return to normal vision on her own. She will go back for her "normal" eye exam in February.
Anna is excited for preschool to start next week! She has missed going to school this summer. She took swimming lessons for two weeks the middle of July. It was just a very basic preschool class. The following weekend, we went to visit Jason's parents, and Anna LOVED swimming in their pool! She was even jumping off their diving rock and swimming the majority of the way across the pool. What a big girl! But, when I told her to take a quick breath when her head is above water (she is able to get her head above water herself), she said "I don't need to! I have gills!" What a clown. :)
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