8-20-2014 Anna's 13th infusion and doctor appointment update

Yesterday was Anna's 13th infusion.  In fact, we had a triple infusion party!  I lined up all of the kiddo's infusions so they would be on the same day.  Sarah gets hers every other week, but the other two get them every week.  Wednesdays work best since that is generally the one night a week we have free.  And it is a 2 1/2 to 3 hour process from the time we have to pre-medicate until the infusions are finished.  Zach and Anna get theirs weekly, so it is only every other week, so it is only every other week that all 3 of them get them at the same time.  (Believe it or not, the TV isn't even on.  They are just zoned out.)

Anna did well with this infusion, but she ended up crashing hard about 6pm, right in the middle of it.  She woke up a bit when I took her needles out.  And she woke up a little while we put a pullup on her (she hasn't been wearing them, but she was so tired I was worried she would wet herself. She didn't...she was still dry this morning!).  Other than that, she slept right through until 7am.  She didn't even eat dinner.  She went to school today and is doing great.

Monday, Anna and Sarah both had a follow up appointment with the nurse practitioner (who we love!) at the allergy, asthma and immunology office.  She doesn't usually get to have follow ups with her because she is sick so often that she is always in there.  She has not been in since May, and has not needed any medication since then (not even her asthma meds or an antibiotic).  She is too little to do the pulmonary function test,  but her lungs were totally clear without meds!

We are so thankful Anna is doing so well, and that we found something that is keeping her healthy!