This week it was infusion party Thursday instead of Wednesday. With last week's infusion, we upped Anna's flow rate from F275 to F600. She did great with that. But with the fast flow, I decided we needed "bigger" needles. We went from 6mm 27 gage needles to 9mm 26 gage needles. Anna also had been feeling not herself the past couple of weeks (though she hadn't been sick exactly), so we decided to also up her dose from 4 grams in 20mL of fluid to 6 grams in 30mL of fluid. She did awesome with the new amount and wasn't swollen or anything afterwards (I think probably because of the new needle size).
Two of the Mom's on my Zebra board (kids with PID are called "Zebras") made an amazing video to raise awareness. My 3 zebras are in it as well. They did an outstanding job. Please take a minute (or 8) to watch the video.
https://www.youtube.com/watch?v=qT8ecqF63Ck
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